Could describe what I have to say or my current mood, take your pick.
So on Thursday I was supposed to get a spinal tap...yeah that did not go at all as planned. Our insurance company has decided they are not covering anything here. So I will be responsible for two office visits, my EMG and whatever they decide they will not cover of my bloodwork although they sent me to the place I had to have it since they would not do it at the hospital.
We are appealing, we are begging, we are fighting to see what we can do here. If we can do nothing here I will be coming home with a referral to Emory where we can run the tests at home and see what happens from there.
In the meantime, I am in HORRIBLE pain, I am not sure if it is the weather or all the exercise or a combination but whatever it is it HURTS. It took me over an hour to get out of bed this morning and I am moving at a snails pace. I took a shower thinking that might help, not so much.
I am trying hard to be positive today. I am trying hard not to think of all the things I am missing at home, I am trying hard to focus on the now but the now is really discouraging.
So yeah blah, blah, blah...
Love, Jenn
We all love you and are praying for you. JUST REMEMBER- GOD know best. and love you very very much.
ReplyDeleteLove ya
Carol Daring
Hi Jiggy. We do not know each other but I do and did attend FBCL for around 4 years now. My name is Kendra Rice and I am the nieceof Jeff and Amelia Hill. My husband and I used to rent an apartment from Ron and Sharon Nasworthy. Maybe you know them? Anyway, I have Crohns Disease and have had it for 10 years. I dk exactly what you have but I just read your blog for yesterday and I just wanted to tell you I know WHAT it feels like to be in pain. Pain can totally and utterly destroy your quality of life if you dont get control of it. I finally have been able to get in to see a pin management specialist around 3 months ago. However, before that,I was in debillitatiing pain EVERY day and litterally suffered daily with out any relief. It got so bad that I was sleeping with a heating pad on high 24-7 for a year or more. I now have burns on my belly that will never go away. Anyway....I hope you will get some relief and healing somehow....I know we are supposed to give it all to God during this time....but it is sooo hard. As far as your insurance goes....understand that all to well also. You see, I am on Remicade and my treatments cost $8000 every 4 weeks. I am on Medicaid and have not had any out of pocket costs or denial of treatment as of current, but I feel it is only a matter of time due to the exspense Im sure. I will pray for you and hope all goes well.
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