Airplanes, reunions and nerve tests OH MY!

Well hello there. This is the first time I have had to update the blog. My computer will not pick up a wireless signal so I am using John's and so here I am.

My flight to Philly was good. I had to pay extra to have my overweight luggage on board, I had a fabulous wheelchair ride to security...that is where it gets fun...apparently my insulin and syringes and laptop set off some sort of Homeland Security alarm and I had to have my stuff rexrayed, and I had to be PATTED down...SERIOUSLY??? The nice lady asked if I had any sensitive areas on my body...I told her my whole body. She just looked at me and continued to pat me down...so after that it was back in the wheelchair and onto the gate. They also took my cane away and put it through the xray machine and then the guy asked me if I was able to walk without it. REALLY. If I was able to walk without it I would you fool...so he held my hand while I walked through the metal detector.

I had my gate switched from B14 to B-3 which is almost at the end of the B gates. I am so glad I took advantage of the wheelchair services. When I got to the ticket counter the agent informed me that they had changed my seat. I was closer to the front and had a window seat. That worked out really well. As most of you know, I seem to be a magnet for people who like to overshare so there was a specific prayer that I get a quiet seat mate. Well, prayers were answered and as soon as my seat mate sat down she said hello and promptly put her earbuds in. Thank you Jesus.

The flight was uneventful. We hit a little turbulence here and there but for the most part it was a smooth flight. John met me at baggage claim and promptly threw his back out dragging my suitcase off the belt and to the car. It was very cool to see him after so long. I did let him give me a hug. It was the least I could do after all he has done for me over the last month. Alycia was waiting up for us and we hit it off right away. Jack and I met this morning and at first he would not talk to me but now we are friends and I think tomorrow when my box of stuff comes tomorrow and he gets his present from "iggy" it will seal the deal!

Leaving the family behind was horrendous. Olivia was hysterical, Emma was crying and me and Harvey just tried to hold it together...I have talked to them several times since and they seem to be doing okay. I miss them terribly but know that all the things I am doing will get me back to them in better health and in the long rin that is what s best for all of us.

Now onto the news of the day...we went to Philadelphia today to the doctor. We got there in time...this is where it went horribly LONG! The waited for about 30 minutes for them to take me back, then I waited for what seemed like forever before the PA (Amy) came in and ran me through my paces. Then we waited some more...my appointment was at 2 and the doctor came in sometime around 4...SERIOUSLY! The ironic part is that on my patient information says to be on time because they try to run on time and that if you are more than 15 minutes late they will cancel your appointment...so after waiting all that time, the doctor is quite concerned. He is not convinced that I have CIDP. Yet he is not sure what is going on yet SO...

Tomorrow at 11am he will be doing another EMG-that is a nerve conduction test...this is not my first rodeo, I have had two of these. He wants to see for himself. The lady at the office told us that the earliest they could get us in was December 15th. John promptly explained that that was not soon enough so she called back and had our appointment for tomorrow. God is good.

They also want me to do some PT as my right side has a severe deficit. My shoulder is frozen and needs some work. So we will do what we have to do and get that done. So rest assured that while I am away I am hard at work trying to get better. This is quite the adventure.

So keep praying, I need it. I am really feeling a bit disappointed about sort of being back at square one but I also feel hopeful that the doctor is on the right track and we will get the answers I have been looking for for the last two years. I am also a little scared of the unknown but as God has promised me in Timothy...He has not given me a spirit of fear so I will cling to that in these days when I am away from all things comfortable.

To the Pink Nation I have been blessed by your encouraging cards and letters. I love you all.

Love, Jenn